Working Groups

The network is divided into five working groups (WGs). Explore them below.

WG1: Meta study on latest knowledge on methodology and scientific evidence

Led by Prof. Celine Gillebert

The main task of the meta-study group is to systematically collect theoretical and empirical evidence from the literature, technical and clinical expertise from the Action members, and knowledge on the latest XR technology for the assessment and treatment of SN and related disorders. This information
will be used to facilitate clinical, technical, and empirical (well-informed) design choices for the development of assessment and treatment methodology in WG2 and WG3 using an agreed set of XR requirements.

WG2: Assessment of spatial neglect and related disorders

Led by Dr. Hanne Huygelier

Based on the work of WG1 the main task of WG2 will be to operationalise methodologies for assessment of SN and related disorders using XR. The aim is to improve the diagnostic accuracy of the many subsymptoms of SN and differentiate diagnostics of related disorders and define common data elements. Short-Term Scientific Missions (STSM) will be created to perform critical appraisals of XR technologies and methods for diagnosis. In addition, meetings with stakeholders will be held to infer guidelines on what features of SN assessment are needed for successful clinical implementation across countries

WG3: Treatment of spatial neglect and related disorders

Led by Dr. Britta Stammler

Based on the work of WG1, the main task of WG3 will be to standardise methodologies for implementing treatment methods in XR for SN and related disorders. The aim will be to implement conventional and novel treatment approaches with XR that are more flexible allowing for individualised neurorehabilitation.
STSMs will allow for critical appraisals of the technologies and methods currently used or in the development stage for neurorehabilitation across network member sites. In addition, meetings with stakeholders will be held to infer guidelines on what features an SN treatment needs for successful clinical implementation, considering differences in clinical provision across countries.

WG4: Creation of a data collection and sharing policy/platform

Led by Dr. Sergi Bermúdez i Badia

The aim of WG4 is to facilitate data sharing for multicentre studies on diagnostic accuracy and treatment efficacy of SN and related disorders. The main task is to define data policies, agree on best practices, identify and extend suitable ontologies for data sharing and re-use, and create a data storage/sharing
platform from the data elements defined in WG2 and WG3. It will draw on interoperability standards (e.g. FHIR with suitable extensions from LOINC, SNOMED CT, OMOP CDM, and CDISC). While adhering to the General Data Protection Regulation (EU GDPR) and EDPB ethics guidelines and aiming at creating FAIR (Findable, Accessible, Interoperable, and Reusable) data repositories, WG4 will consider existing infrastructure such as Zenodo, EUDAT, EOSC and European Health Data Space (EHDS) nodes.

WG5: Multicentre project planner

The main task of WG5 is to prepare protocols for future multicentre studies based on the activities and deliverables from WG1 (meta study), WG2 (assessment), WG3 (treatment), and WG4 (data policy). Defining study objectives, design, and methods for investigating diagnostic accuracy and treatment
efficacy of XR neurorehabilitation of SN and related disorders. WG5 will also identify relevant funding agencies and deliver a plan for the sustainability of these multicentre studies